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Showing posts from September 25, 2026

Bye Bye DEXA!

I am officially weaned off my steroid DEXAMTHASONE!!! I have been on it for about 7 weeks for pain. I started at 2mg and tried to wean off twice in last few weeks, but today marks 48 hours off of it with no increase in pain. I am now on Tylenol only. I will take this as a minor win. I gained 14 pounds on DEXA and it totally disrupted my sleep and made me wired all day and all night. But I needed it to decrease bad bone pain and cancer soft tissue pain. My cancer numbers must be low enough now that I don't need it anymore and I am very happy to not be on it!!! DEXA is pretty strong and they use it for cancer often. The conversion to the more known steroid of prednisone is 0.75 mg Dexamethasone = 5 mg Prednisone so my starting dose was kinda high. Plus, the KISQALI increases the amount in circulation two fold. My face was getting really puffy and I am now trying to get rid of oral thrush as a result of the steroid (it lowers immune system). I'll take this little win!!! Bye, Bye, ...