A Strong Immune System is Soooo Important!
After I completed round 1 of KISQALI I asked the oncologists to reduce my dose from 600mg daily to 400mg daily because I watched my immune system numbers drop and was scared of what that meant for my ability to fight infections. However, both convinced me to remain on the higher dose, so I did. Well, now after round 2, my neutrophil count is in the dangerously low levels and both oncologists want me to take a total break from the KISQALI! My WBC is 1.5 and I am Grade 3 neutropenic at .74. I am fighting infections. I am totally exhausted. I nap three hours a day. I feel like I have mono. I have oral and throat thrush. I am being tested for a possible kidney infection. I have a bizare cyst or enlarged lymph node they want to do an ultrasound on. I have mouth sores. The medicine sometimes is worse than the disease. I knew early on the huge dose was too much for my body and finally I am being listened to, better late than after a potentially life threatening event. I read that Stage 4 is ...